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RARE DISEASE DAY

Click HERE to visit the official website for Rare Disease Day

WHAT YOU CAN DO

 TAKE PART IN THE 

 LIGHT UP FOR RARE 

 INITIATIVE! 

For the past few years, the Empire State Building has been lit up in rare disease colors.

 

Help us light up buildings all across the world for rare disease day!

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 SPREAD THE WORD & 

 JOIN IN ON THE

 #RAREDISEASEBLACKOUT 

Raise awareness by posting online and spreading the word!

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Share information and get people interested in rare diseases.

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Participate in the #RareDiseaseDayBlackout!

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WATCH OUT FOR THE EVENTS & HAVE FUN!

Find events to attend on the official website for rare disease day (Click HERE)

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Rocket Pharmaceuticals and NORD will be hosting panels every Friday in February so watch out for more details on those events!

Shaping Foundations

501(c)(3) nonprofit for rare diseases. 

Our mission is to advocate, raise awareness, and fundraise for rare diseases. 

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While we want to share our financial records with you, we also want to preserve our privacy. If you would like a copy of our tax returns, nonprofit determination, or form 1023, please email us directly and we’d be happy to provide those to you within a week's time.

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© 2022 by Shaping Foundations
 

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