Our
Partners
Who we support and collaborate with.
scroll
ROCKET PHARMACEUTICALS
Rocket Pharmaceuticals, Inc. is an emerging, clinical-stage biotechnology company. They focus on developing first-in-class gene therapy treatments for rare, undertreated diseases. Rocket utilizes a multi-platform development approach, and has several lentiviral-based programs.
For more info on Rocket and their clinical trials, check out their website!
RARE DISEASE WARRIORS
RARE DISEASE WARRIORS is an organization and Facebook Group for the rare disease community. They work to inform the public of the importance of donations and provide a community for those with rare diseases. With more than 2000 members, the Facebook group is a wonderful and inclusive community for rare disease patients and advocates. This organization is led by Christopher DeHaven.
DR SHYAMALA PEESAPATI
Dr Shyamala Peesapati is a rare disease advocate from India and is one of our very own Rare Ambassadors. She is also the author of the book "WORLD WILL REMEMBER YOU DAD: Raise The Rare And Rise". Her story is truly inspirational as she advocates for rare diseases through interviews, writing, and collaborations with other advocates & organizations. Check out Dr Peesapati's rare disease story HERE to read about her journey to rare disease advocacy. Follow her on Instagram @the_rare_world to see her amazing content!
RARE YOUTH REVOLUTION
The RARE Youth Revolution is a news platform for young people to access relevant content centered around rare diseases. This youth magazine aims to provide a platform for young RARE voices to be heard and empowering a future generation of rare disease advocates. We have partnered with them through their blog, rare disease day content, and our podcast.
