We hosted a virtual
RARE DISEASE EVENT:
Being Rare in the Pandemic
In honor of rare disease day on February 28th, 2021 from 10:30 AM to 12:00 PM we held our first event for you to get to know our organization and partners, while gaining a unique perspective on the rare disease community during the pandemic.
ARE YOU A PATIENT OR CAREGIVER?
In order to help those who are affected by rare diseases, we have created a RESOURCES page which compiles what we believe to be the best resources for educating and supporting patients.
Check us out @shapingfoundations !
Welcome to Shaping Foundations
Shaping Foundations is a student-led nonprofit organization dedicated to advocating for, fundraising for, and spreading awareness about rare diseases. Though they are termed “rare,” these diseases collectively are anything but, and it is our mission to educate people about these diseases that are supposedly “as rare as a blue moon.” Moreover, just because these diseases are “rare,” does not mean they are worth any less attention. By sharing the stories of those affected by these diseases as well as educational resources about them, we hope to show that rare diseases are just as important as any other. Check out our pages above for more information!