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Rare Disease Day 2022: "RARE, BUT NOT ALONE" Event Hosted by Rocket Pharmaceuticals

Writer's picture: Shaping FoundationsShaping Foundations

This past Rare Disease Day (February 28th, 2022) Rocket Pharmaceuticals invited Shaping Foundation's co-founders, Anirudh Koneru, Pooja Shah, Cayla Xue, and Liesha Yenduri, to attend their event in New York City at the Nasdaq MarketSite Building.


A presentation about Shaping Foundations was also played during this event (click HERE to watch the recording of Shaping Foundation's event), and it was a wonderful opportunity for the four co-founders to not only listen to but also network with the guest speakers and Rocket Pharmaceutical employees at the event. They were further able to speak to patients, advocates, and healthcare professionals, including Dr. Moris Danon, the researcher that discovered the rare disease focus of the event, Danon Disease.



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We, the co-founders of Shaping Foundations, would like to thank Rocket Pharma for providing us with the opportunity to partake in this event. It was a wonderful experience for us to directly interact with the rare disease community, and we all learned so much from everyone's stories.


For more information, please feel free to contact us at shapingfoundations@gmail.com or through our website's "Contact Us" page.




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Shaping Foundations

501(c)(3) nonprofit for rare diseases. 

Our mission is to advocate, raise awareness, and fundraise for rare diseases. 

While we want to share our financial records with you, we also want to preserve our privacy. If you would like a copy of our tax returns, nonprofit determination, or form 1023, please email us directly and we’d be happy to provide those to you within a week's time.

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