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Stay educated about rare diseases and the rare disease community!

Shaping Foundations

501(c)(3) nonprofit for rare diseases. 

Our mission is to advocate, raise awareness, and fundraise for rare diseases. 

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While we want to share our financial records with you, we also want to preserve our privacy. If you would like a copy of our tax returns, nonprofit determination, or form 1023, please email us directly and we’d be happy to provide those to you within a week's time.

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